Cure AHC Main Donation Page for the AAV Project

 
Contribute

 

 

$7,542 raised

Ended Dec 31, 2021

 

AHC is a complex, ultra-rare neurological disease. The majority of cases (approx. 80%) are caused by mutations in the gene ATP1a3 (though there are other potential genetic root causes, which Cure AHC funds active research to discover/con?rm). The hallmark of this disease is bouts of temporary paralysis that alternate from one side of the body to the other (or sometimes engulf the entire body), lasting anywhere from minutes to days at a time. AHC IS LIKE HAVING 7 DISEASES AT ONCE: Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases like Batten’s disease, Friedreich’s Ataxia, Niemann-Pick disease, Rett Syndrome, Giant Axonal Neuropathy, Spinal Muscular Atrophy, and multiple retinal disorders. This is not only cutting-edge science, but also a proven, effective, and permanent part of the genetic code. It will be delivered by a one-time injection into the cerebrospinal fluid and is designed to permanently correct the dysfunction caused by a mutated gene. Unlike drugs, gene therapy targets the source of the problem: DNA. In many diseases, it permanently corrects the dysfunction caused by a problematic gene.

WE CALL THAT A CURE!

We have to prove out the concept first before proceeding to human clinical trials. The process is detailed on our minisite http://www.cureahcchallenge.org and the cost to us is $600,000. If this process proves successful, it will not only mean the potential to cure alternating hemiplegia of childhood, but also the possibility of a pathway for thousands of other diseases affecting millions of people to move to cure as well. This means your donation whatever size could have a HUGE impact on the world! Please click below to support our AAV Project and keep us "soaring on the wings of hope" on the way to the cure!

Christine S gave $25
May 11, 2023
  

Christine S gave $25
May 11, 2023
  

Gerald L gave $100
Nov 2, 2021
  

Gerald L gave $100
Nov 2, 2021
  

Ainsley T gave $50
Oct 25, 2021
  

Jay H gave $50
Oct 25, 2021
  

Jay H gave $50
Oct 25, 2021
  

Ainsley T gave $50
Oct 25, 2021
  

Katie M gave $75
Oct 23, 2021
  

Katie M gave $75
Oct 23, 2021
  

christine s gave $25
Oct 19, 2021
  

Christine S gave $25
Oct 19, 2021
  

Kate T gave $10
Oct 13, 2021
  

Kate T gave $10
Oct 13, 2021
  

John P gave $250
Oct 8, 2021
  

elaine g gave $25
Oct 8, 2021
  

Kristen C gave $25
Oct 8, 2021
  

Kristen D gave $15
Oct 8, 2021
  

Elaine G gave $25
Oct 8, 2021
  

Kristen C gave $25
Oct 8, 2021
  

Elaine G gave $25
Oct 8, 2021
  

John P gave $250
Oct 8, 2021
  

Kristen D gave $15
Oct 7, 2021
  

Helen T gave $25
Oct 2, 2021
  

Helen T gave $25
Oct 2, 2021
  

Emily R gave $100
Sep 20, 2021
  

Ann R gave $300
Sep 19, 2021
  

Ann R gave $300
Sep 19, 2021
  

Emily R gave $100
Sep 19, 2021
  

Cara D gave $75
Sep 27, 2020
  

Dana H gave $180
Sep 27, 2020
  

Andrea C gave $25
Sep 27, 2020
  

Cara D gave $75
Sep 27, 2020
  

Dana H gave $180
Sep 27, 2020
  

Andrea C gave $25
Sep 27, 2020
  

James M gave $15
Sep 26, 2020
  

James M gave $15
Sep 26, 2020
  

Maria C gave $10
Sep 23, 2020
  

Maria C gave $10
Sep 22, 2020
  

Holly C gave $80
Sep 21, 2020
  

Holly C gave $80
Sep 21, 2020
  

Christine S gave $25
Sep 20, 2020
  

Christine S gave $25
Sep 20, 2020
  

Joseph C gave $25
Sep 18, 2020
  

Joseph C gave $25
Sep 18, 2020
  

Rosemary G gave $80
Sep 17, 2020
  

Rosemary G gave $80
Sep 17, 2020
  

Bridgette H gave $40
Sep 15, 2020
  

Katherine S gave $25
Sep 15, 2020
  

Bridgette H gave $40
Sep 15, 2020
  

Katherine S gave $25
Sep 14, 2020
  

Folorunso A gave $200
Sep 9, 2020
  

Alexandra v gave $10
Sep 9, 2020
  

Eugene P gave $50
Sep 9, 2020
  

Folorunso A gave $200
Sep 9, 2020
  

Alexandra v gave $10
Sep 8, 2020
  

Eugene P gave $50
Sep 8, 2020
  

Tamar N gave $75
Sep 6, 2020
  

Erin J gave $25
Sep 6, 2020
  

Tamar N gave $75
Sep 6, 2020
  

Erin J gave $25
Sep 6, 2020
  

Gerald L gave $175
Sep 3, 2020
  

William G gave $100
Sep 2, 2020
  

John S gave $75
Sep 2, 2020
  

Julie M gave $500
Sep 2, 2020
  

Bill G gave $100
Sep 2, 2020
  

John S gave $75
Sep 2, 2020
  

Gerald L gave $175
Sep 2, 2020
  

Julie M gave $500
Sep 1, 2020
  

Anonymous gave $103
Apr 8, 2019
  

Donald H gave $50
Apr 6, 2019
  

Gregory G gave $205
Mar 18, 2019
  

Anonymous gave $31
Feb 17, 2019
  

Mary G gave $51
Feb 17, 2019
  

Sophie J gave $100
Feb 15, 2019
  

Dale J gave $1,095
Feb 1, 2019
  

Alex M gave $50
Jan 19, 2019
  

Jeff W gave $103
Jan 9, 2019
  

© 2024 - Cure AHC. All Rights Reserved. Powered By Charityproud

 

Cure AHC Main Donation Page for the AAV Project

AHC is a complex, ultra-rare neurological disease. The majority of cases (approx. 80%) are caused by mutations in the gene ATP1a3 (though th more...

by Cure AHC, Raleigh, NC
Created January 9, 2019
 
Contribute

 

AHC is a complex, ultra-rare neurological disease. The majority of cases (approx. 80%) are caused by mutations in the gene ATP1a3 (though there are other potential genetic root causes, which Cure AHC funds active research to discover/con?rm). The hallmark of this disease is bouts of temporary paralysis that alternate from one side of the body to the other (or sometimes engulf the entire body), lasting anywhere from minutes to days at a time. AHC IS LIKE HAVING 7 DISEASES AT ONCE: Gene therapy provides a path to a cure for AHC. A similar approach has already been successful in many diseases like Batten’s disease, Friedreich’s Ataxia, Niemann-Pick disease, Rett Syndrome, Giant Axonal Neuropathy, Spinal Muscular Atrophy, and multiple retinal disorders. This is not only cutting-edge science, but also a proven, effective, and permanent part of the genetic code. It will be delivered by a one-time injection into the cerebrospinal fluid and is designed to permanently correct the dysfunction caused by a mutated gene. Unlike drugs, gene therapy targets the source of the problem: DNA. In many diseases, it permanently corrects the dysfunction caused by a problematic gene.

WE CALL THAT A CURE!

We have to prove out the concept first before proceeding to human clinical trials. The process is detailed on our minisite http://www.cureahcchallenge.org and the cost to us is $600,000. If this process proves successful, it will not only mean the potential to cure alternating hemiplegia of childhood, but also the possibility of a pathway for thousands of other diseases affecting millions of people to move to cure as well. This means your donation whatever size could have a HUGE impact on the world! Please click below to support our AAV Project and keep us "soaring on the wings of hope" on the way to the cure!

Christine S gave $25
May 11, 2023
  

Christine S gave $25
May 11, 2023
  

Gerald L gave $100
Nov 2, 2021
  

Gerald L gave $100
Nov 2, 2021
  

Ainsley T gave $50
Oct 25, 2021
  

Jay H gave $50
Oct 25, 2021
  

Jay H gave $50
Oct 25, 2021
  

Ainsley T gave $50
Oct 25, 2021
  

Katie M gave $75
Oct 23, 2021
  

Katie M gave $75
Oct 23, 2021
  

christine s gave $25
Oct 19, 2021
  

Christine S gave $25
Oct 19, 2021
  

Kate T gave $10
Oct 13, 2021
  

Kate T gave $10
Oct 13, 2021
  

John P gave $250
Oct 8, 2021
  

elaine g gave $25
Oct 8, 2021
  

Kristen C gave $25
Oct 8, 2021
  

Kristen D gave $15
Oct 8, 2021
  

Elaine G gave $25
Oct 8, 2021
  

Kristen C gave $25
Oct 8, 2021
  

Elaine G gave $25
Oct 8, 2021
  

John P gave $250
Oct 8, 2021
  

Kristen D gave $15
Oct 7, 2021
  

Helen T gave $25
Oct 2, 2021
  

Helen T gave $25
Oct 2, 2021
  

Emily R gave $100
Sep 20, 2021
  

Ann R gave $300
Sep 19, 2021
  

Ann R gave $300
Sep 19, 2021
  

Emily R gave $100
Sep 19, 2021
  

Cara D gave $75
Sep 27, 2020
  

Dana H gave $180
Sep 27, 2020
  

Andrea C gave $25
Sep 27, 2020
  

Cara D gave $75
Sep 27, 2020
  

Dana H gave $180
Sep 27, 2020
  

Andrea C gave $25
Sep 27, 2020
  

James M gave $15
Sep 26, 2020
  

James M gave $15
Sep 26, 2020
  

Maria C gave $10
Sep 23, 2020
  

Maria C gave $10
Sep 22, 2020
  

Holly C gave $80
Sep 21, 2020
  

Holly C gave $80
Sep 21, 2020
  

Christine S gave $25
Sep 20, 2020
  

Christine S gave $25
Sep 20, 2020
  

Joseph C gave $25
Sep 18, 2020
  

Joseph C gave $25
Sep 18, 2020
  

Rosemary G gave $80
Sep 17, 2020
  

Rosemary G gave $80
Sep 17, 2020
  

Bridgette H gave $40
Sep 15, 2020
  

Katherine S gave $25
Sep 15, 2020
  

Bridgette H gave $40
Sep 15, 2020
  

Katherine S gave $25
Sep 14, 2020
  

Folorunso A gave $200
Sep 9, 2020
  

Alexandra v gave $10
Sep 9, 2020
  

Eugene P gave $50
Sep 9, 2020
  

Folorunso A gave $200
Sep 9, 2020
  

Alexandra v gave $10
Sep 8, 2020
  

Eugene P gave $50
Sep 8, 2020
  

Tamar N gave $75
Sep 6, 2020
  

Erin J gave $25
Sep 6, 2020
  

Tamar N gave $75
Sep 6, 2020
  

Erin J gave $25
Sep 6, 2020
  

Gerald L gave $175
Sep 3, 2020
  

William G gave $100
Sep 2, 2020
  

John S gave $75
Sep 2, 2020
  

Julie M gave $500
Sep 2, 2020
  

Bill G gave $100
Sep 2, 2020
  

John S gave $75
Sep 2, 2020
  

Gerald L gave $175
Sep 2, 2020
  

Julie M gave $500
Sep 1, 2020
  

Anonymous gave $103
Apr 8, 2019
  

Donald H gave $50
Apr 6, 2019
  

Gregory G gave $205
Mar 18, 2019
  

Anonymous gave $31
Feb 17, 2019
  

Mary G gave $51
Feb 17, 2019
  

Sophie J gave $100
Feb 15, 2019
  

Dale J gave $1,095
Feb 1, 2019
  

Alex M gave $50
Jan 19, 2019
  

Jeff W gave $103
Jan 9, 2019
  

 

$7,542 raised

Ended Dec 31, 2021

 

Christine S gave $25
May 11, 2023
  

Christine S gave $25
May 11, 2023
  

Gerald L gave $100
Nov 2, 2021
  

Gerald L gave $100
Nov 2, 2021
  

Ainsley T gave $50
Oct 25, 2021
  

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© 2024 - Cure AHC. All Rights Reserved. Powered By Charityproud